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LINKS
» Basic Information about CF
» Diagnose and Symptoms
» Screening Information
» CF Support
» Organ Donation and Transplantation Organizations
» Fertility Information
» Pharmaceuticals & Patient Assistance Programs
» Scholarship Information
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Basic Information about CF
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Cystic Fibrosis Foundation
- Resource information about cystic fibrosis
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www.cff.org
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KidsHealth for Parents
- CF topics for parents and caregivers
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www.kidshealth.org
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- Resources for people living with CF.
- Personal management tools to track important health measures on a daily basis
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www.mycysticfibrosis.com
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Diagnose and Symptoms
Screening Information
CF Support
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Cystic-L
- An online service dedicated to the exchange of information and support specific to cystic fibrosis.
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www.cystic-l.org
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Organ Donation and Transplantation Organizations
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United Network for Organ Sharing
- To improve the effectiveness of human organ donation, procurement, distribution, and transplantation.
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www.unos.org/
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Children's Organ Transplant Association (COTA)
- Ensures that no U.S. citizen is denied life saving transplant solely due to lack of funds.
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www.cota.org
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National Foundation for Transplants
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www.transplants.org
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Novartis
- Comprehensive information on transplantation
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www.transplantsquare.com
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TransWeb
- All about transplantation and donation
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www.transweb.org
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- Created by people with cystic fibrosis to educate people about the disease and raising awareness of organ transplantation.
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www.friends4life.org.uk
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- To provide information, direct you to other resources and to give you a place to discuss and ask questions about the transplant process in general.
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www.transplantbuddies.org
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Taking Flight
- Recipients of lung transplant share their stories of success.
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www.trafford.com
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National Transplant Assistance Program (NATF)
- Provides vital transplant and donor organ information, financial assistance, fundraising advice and trusteeship.
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www.transplantfund.org/
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Fertility Information
Pharmaceuticals & Patient Assistance Programs
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Digestive Care, Inc. makers of Pancrecarb®
- Treatment for pancreatic enzyme deficiency.
- Offers assistance, starter, and first start programs, helping those in need.
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www.digestivecare.com
www. digestivecare.com
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Axcan Scandipharm, makers of Ultrase®
- Offers CareFirst, Comprehensive care and Rx cost reduction programs to ease the financial burdens of patients.
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www.axcanscandipharm.com
www.axcanscandipharm.com
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Solvay Pharmaceuticals, makers of Creon®
- Treatment for pancreatic enzyme deficiency and patient assistance programs.
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www.solvaypharmaceuticals-us.com
www.solvaypharmaceuticals-us.com
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Novartis Pharmaceuticals, makers of TOBI®
- Provide assistance to patients experiencing financial hardship.
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www.pharma.us.novartis.com
www.pharma.us.novartis.com
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Genentech, manufactures of Pulmozyme®
- Offers access to Care Foundation and the Genentech Endowment for CF expanding patients' access to Pulmozyme therapy
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www.gene.com
www.gene.com
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Hill-Rom, Inc. maker of the Vest™
- Offers an airway clearance system used to help clear excess mucus from the lungs.
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www.thevest.com
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Source CF®
- Offers a comprehensive family of products, including the eFlow®
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www.sourcecf.com
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Pari, maker of the Pari LC+ nebulizer
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www.pari.com
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RespirTech, maker of the inCourage System®
- Offers an airway clearance system used to help clear excess mucus from the lungs.
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www.respirtech.com
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Angel Food Ministries
- A non-profit, non-denominational organization dedicated to providing grocery relief to communities throughout the United States.
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www.angelfoodministries.org/
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Scholarship Information
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